Summerland family copes with rare kidney disease

Seven-year-old girl has been diagnosed with nephrotic syndrome

COPING WITH KIDNEY DISEASE Seven-year-old Ainsley Campbell has been diagnosed with nephrotic syndrome, a rare form of kidney disease. When she has a virus, her kidneys stop functioning properly. (Photo submitted)

When seven-year-old Ainsley Campbell of Summerland picks up a virus, it is a serious matter as her kidneys stop functioning properly.

“Right now she’s in a full-blown relapse,” said her mother, Melissa Campbell. “This one’s been pretty hard.”

As a result, Ainsley Campbell was not able to participate in an Orca Swim Club meet on the weekend.

Two years ago, she was diagnosed with nephrotic syndrome, a rare form of kidney disease. The syndrome affects four to eight children out of 100,000.

Because the disease is so rare, the family is learning how to cope with it.

“Each time she relapses, the side effects are worse and more intense,” Melissa Campbell said.

However, the family is working to give Ainsley Campbell as normal a life as possible. She is in Grade 1 and is an active child as long as she is not coping with a virus.

When she has a virus, some of the medications have side effects including mood swings and depression. Treatment includes prednisone, which results in increased appetite and weight gain.

Melissa Campbell said some of the children diagnosed with nephrotic syndrome will grow out of the condition, while others will have it for life.

RELATED: B.C. woman planned to donate a kidney to her husband, then found out she has cancer

RELATED: ‘Don’t worry sis, my kidney’s your kidney’: B.C. women share transplant journey

The way to determine whether the condition is temporary or permanent is through a biopsy, which is not recommended until Ainsley turns eight.

“There’s so little known about this disease,” Melissa Campbell said.

Kidney Coin donation boxes, with Ainsley Campbell’s picture, are at the IGA stores in Summerland, Penticton and Okanagan Falls. Boxes are also available at other Summerland businesses.

During Kidney Health Month, which runs through March, the Kidney Foundation is urging people to make sure to get their kidney function checked.

“Kidney disease has such minor symptoms that you can lose up to 80 per cent of kidney function before you’re diagnosed,” said Annick Lim of the foundation in Penticton.

Those who have diabetes or high blood pressure should get their kidney function checked often, as 90 per cent of new cases of kidney disease are related to those conditions.

For information or to conduct a kidney self-assessment, visit www.kidneyhelathcheck.ca.

Just Posted

Six bears destroyed in three days in West Kelowna

A West Kelowna business has been charged for leaving garbage around Lake Okanagan Resort

Boil water notice rescinded for parts of West Kelowna

Westbank Centre residents along the Old Okanagan Highway can safely drink their water again

West Kelowna Warriors being sold back to BC Hockey League

Current owner Kim Dobranski said the sale back to the BCHL should be completed by the end of October

Police standoff ends peacefully in West Kelowna

A distraught man was taken into custody Wednesday afternoon

Central Okanagan MP candidates put thousands into Facebook ads

Liberal candidate Stephen Fuhr leads the pack with over $15,000 in ad spending according to a report

Competition shakes up for the Okanagan Mixoff

The Okanagan Mixoff takes place Nov. 7 in Kelowna

Woman, 24, faces life-altering injuries after being dragged 4 blocks by vehicle in Vancouver

A gofundme account says the woman will have to undergo multiple complex surgeries

Fatal overdoses down by 33% in B.C., but carfentanil deaths continue to spike

Carfentanil, an illicit drug more powerful than fentanyl, causing more deaths than ever

VIDEO: Meet your Kelowna-Lake Country candidates

All seven Kelowna-Lake Country candidates answer questions about themselves and their policy

VIDEO: Meet your Central Okanagan-Similkameen-Nicola candidates

Central Okanagan-Similkameen-Nicola candidates answer questions about themselves and their policy

South Okanagan dangerous offender guilty plea struck down

Trial delayed again because Ronald Teneycke failed to elect his choice of trial

A year after pot legalization in Canada, it’s a slow roll

It’s one year into Canada’s experiment in legal marijuana, and hundreds of legal pot shops have opened

Most Read