Tavia Marlatt refused to leave the hospital until she has an at-home care plan. Submitted photo

Tavia Marlatt refused to leave the hospital until she has an at-home care plan. Submitted photo

B.C. epilepsy patient ends sit-in, awaits answers

Tavia Marlatt and her mother, Renee, met with Fraser Health officials on Friday, April 5.

After refusing to leave Vancouver General Hospital until her health care needs were met, Langley’s 22-year-old Tavia Marlatt is a step closer to receiving what she needs.

Tavia suffers from epilepsy, and can have anywhere from six to 50 seizures a day. Last week, she was at VGH undergoing a series of epilepsy tests that revealed she’s been having seizures from three parts of her brain.

READ MORE: Langley epilepsy patient refuses to leave Vancouver hospital until needs are met

Through a YouTube channel, Tavia documented her stay at the hospital, and said she was refusing to leave the hospital until she was given at at-home care plan.

“Basically, what the plan is, is stay here until my needs are met or the police come,” Tavia explained in a YouTube video.

Fortunately, officials from Langley Memorial Hospital agreed to meet with Tavia and her mother, Renee, last Friday to discuss health care options.

Renee explained the family has been asking the Fraser Health Authority for in-home care support at their family home since Tavia turned 19. She said there is a gap in funding from when children age out of school, and become adults.

Prior to the meeting, Renee said Fraser Health has repeatedly denied funding for in-home care, and has instead suggested Tavia live in a group home.

“We want funding released to have staff at home,” she added.

On the same Friday, Tavia agreed to leave the hospital on “good faith” that long-term funding will soon be provided.

Tavia was diagnosed with epilepsy at age seven, and the severity of it increased when she was eleven.

According to Renee, Tavia’s condition was more manageable when she was school-aged, because the family had the support of her being at school during the day, with people who could administer medications if needed.

Since becoming an adult, the medical system has failed Tavia, according to Renee.

“She needs support to be successful, and hasn’t been given the opportunity to be successful, and that’s hard to see. She [Tavia] says, ‘It’s hard to connect and make friends because they’re too independent for me.’ It’s hard to watch her suffer.”

Renee confirmed there is now short-term funding in place.

After Friday’s meeting, Renee said there is now a proposal for long-term services being drafted, and she is hoping to find out more information by the end of this week.

“They [Fraser Health] recognized there’s a gap in services,” added Renee.

“This isn’t just for Tavia, it’s for any person with epilepsy.”

Fraser Health confirmed they met with the Marlatt family.

“We continue to have ongoing conversations and work on a plan to support the patient’s needs,” Fraser Health said in a statement.

Currently Renee is unsure what type of funding they will receive, but hopes it will be long-term funding to access Choice in Supports for Independent Living (CSIL) – a self-directed home support services program.

“The benefit of having individualized funding is you can customize those supports to be responsive and flexible to a person,” added Renee.

Ideally, Renee is hoping for an in-home support system that is able to administer Tavia’s medications, bring her out into the community, and take her to activities such as her volunteer job.

This would also allow Renee to go back to work, since she wouldn’t have to stay home to care for Tavia herself.

“We’re very hopeful those supports will be in place. As a parent, it’s been really encouraging to see her [Tavia] taking a strong role and lead in advocating for people with epilepsy.”

Renee emphasized her and Tavia’s advocacy isn’t just for their own family needs.

“Our goal is that this isn’t just something for Tavia. Hopefully it will further support change for people with epilepsy or invisible disabilities.”

_________________________________

Is there more to this story?

Email: miranda.fatur@langleyadvancetimes.com

Like us on Facebook or follow us on Twitter

_________________________________

Just Posted

Fruit farmers in the Okanagan and Creston valleys are in desperate need of cherry harvesters amid COVID-19 work shortages. (Photo: Unsplash/Abigail Miller)
‘Desperate’ need for workers at Okanagan cherry farms

Fruit farmers are worried they’ll have to abandon crops due to COVID-19 work shortages

Earls On Top at 211 Bernard Avenue in Kelowna. (Google Maps photo)
Downtown Kelowna’s Earls ordered closed after COVID-19 transmission

Earls on Top on Bernard Avenue will be closed from June 18 to June 27

Danny Fulton receives his first dose of the COVID-19 vaccine at the Coast Capri Hotel on April 27. The pop-up clinic was hosted by the First Nations Health Authority. (Aaron Hemens/Capital News)
Drop-in COVID-19 vaccine clinic planned for Kelowna

Clinic at Kelowna Secondary School from June 22 to 24 from 1 p.m. to 7:30 p.m.

Dereck Donald Sears. (Contributed/Crimestoppers)
Murder charge laid in relation to suspicious Kelowna death

Dereck Donald Sears is charged with second-degree murder in the death of Darren Middleton

A motorycle crash has been reported on Westside Road. (Google Maps)
UPDATE: Westside Road reopened following motorcycle crash near Vernon

AIM Roads advises drivers to expect delays due to congestion

A small pod of Pacific white-sided dolphins pass by close to shore in Campbell River June 16, 2021. Still capture from video courtesy of Kimberly Hart
VIDEO: Dolphin sunset captured from Vancouver Island shore

Spectacular setting for view of travelling pod of Pacific white-sided dolphins

Jeanette Megens
KCR: Volunteering is sharing your story

Kelowna Community Resources shares stories of its volunteers in a weekly column

(File photo)
Penticton not holding Canada Day activities out of respect for Indigenous people

Cities across B.C. are cancelling the holiday after an increased spotlight on Canada’s dark history

Cannabis bought in British Columbia (Ashley Wadhwani/Black Press Media)
Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

Police are asking for public assistance in locating Anthony Graham who has been charged with the murders of Kamloops brothers Carlo and Erick Fryer. (RCMP photo)
2 charged, suspect at large in killings of B.C. brothers linked to gang activity: RCMP

Kamloops brothers Erick and Carlo Fryer were found deceased in May on a remote Okanagan road

Albert Health Minister Tyler Shandro and Alberta Premier Jason Kenney unveil an opening sign after speaking about the Open for Summer Plan and next steps in the COVID-19 vaccine rollout, in Edmonton, Friday, June 18, 2021. THE CANADIAN PRESS/Jason Franson
Alberta 1st province in Canada to lift all COVID-19 public health restrictions

70.2% of eligible citizens 12 and older in the province have received a dose of the vaccine

Fraser Health registered nurse Ramn Manan draws a dose of the Pfizer COVID-19 vaccine into a syringe at a walk-up vaccination clinic at Bear Creek Park, in Surrey, B.C., on Monday, May 17, 2021. THE CANADIAN PRESS/Darryl Dyck
‘Honour our fathers’ with COVID-19 vaccine protection, B.C. urges

109 new cases Friday, 75 per cent of 12 and up immunized

Most Read