Kaye and her son Lazarus Banez are seen in an undated family handout photo. The mother, in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 6 classes in person by mid-November or face removal from the independent school. THE CANADIAN PRESS/HO-*MANDATORY CREDIT*

Kaye and her son Lazarus Banez are seen in an undated family handout photo. The mother, in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 6 classes in person by mid-November or face removal from the independent school. THE CANADIAN PRESS/HO-*MANDATORY CREDIT*

B.C. families of neurodiverse kids left scrambling before school starts: advocates

Advocates say they’d like to see school districts reaching out to families directly to build educational plans

Kaye Banez cried with relief after learning that her eight-year-old son Lazarus, who is on the autism spectrum, can enrol at his school remotely this fall.

The mother in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 3 classes in person by mid-November or face removal from the independent school.

The risk is too high for Lazarus to go back at this point in the COVID-19 pandemic, said Banez, since he relies on touch to sense the world around him and struggles with physical distancing.

“We’re also trying to keep everybody around him safe,” added Banez, noting she has diabetes and her kids’ grandparents on both sides of the family have compromised immune systems.

Banez said it was agonizing as her family worried they would be forced to register Lazarus and his six-year-old sister for home schooling. That would mean Lazarus would lose access to supports, such as speech and occupational therapies, that are paid for through funding that depends on enrolment in school or a distributed learning program — many of which are at capacity, she said.

After meeting with staff from her kids’ school and the Ministry of Education’s inclusive education division on Friday, Banez learned about provincial guidelines that stipulate school districts are required to make so-called “homebound” educational services available to students absent from the classroom because of medical and psychiatric reasons.

The expectation that schools work with families who need access to the homebound program is included in the province’s document guiding the response to the pandemic for students in kindergarten to Grade 12.

However, Banez said she is in touch with another mother on Vancouver Island whose child is on the autism spectrum and who hasn’t yet secured a remote learning option through their school.

“She’s done everything that I’ve done and the answer is still no. So, she’s doing now another step of saying she’s aware of this operational guideline,” said Banez, who serves as the vice president of the board of directors for AutismBC.

“It’s still very inconsistent. Even though the process that parents take to advocate for these accommodations is the same, there’s still children being left behind.”

READ MORE: B.C. school staff, older students required to wear masks in ‘high traffic areas’

It shouldn’t be up to parents to explicitly invoke their rights in order to ensure their kids can access the educational instruction and other supports they need, said Banez.

That’s especially true for parents who are newcomers to Canada and may struggle navigating back-to-school resources that are available primarily in English, she added.

“How could they possibly be calling government officials, school boards, principals, media, writing letters, reading operational guidelines (and) documents pages and pages long?” she asked.

The founder and chair of BCEdAccess, a volunteer-run organization that advocates for equitable access to education for complex learners and kids with diverse abilities, echoed Banez.

Tracy Humphreys said she’d like to see schools and districts reaching out to families directly to build educational plans that address their unique needs.

“The public system has had months now to be aware that there’s a pandemic and that September was coming and that they needed a better plan. It does feel like families, like children with disabilities, have been left out of that plan,” said Humphreys.

In an email, Ministry of Education representatives confirmed their expectation that school districts will be flexible and work with families on a case-by-case basis, including helping families of children with disabilities who aren’t comfortable sending their kids back to the classroom this fall.

But with school starting in a matter of days, Humphreys said she’s waiting for flexible options that meet provincial requirements and expectations to be fully implemented across the province.

“We’re seeing, you know, 60 school districts, plus independent schools, who are under the same direction from the Ministry of Education, responding in very different ways,” she said.

As for Lazarus, Banez said he’s excited to start what they call “mommy school” on Sept. 21.

Brenna Owen, The Canadian Press


Like us on Facebook and follow us on Twitter.

Want to support local journalism during the pandemic? Make a donation here.

CoronavirusEducationSchools

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Kelowna City Hall. (Michael Rodriguez - Capital News)
Kelowna’s 2021 preliminary budget proposes 4.27% tax increase

Proposed budget calls for eight new RCMP officers

Good Samaritan Mountainview Village located at 1540 KLO Road in Kelowna. (Good Samaritan Society)
First long-term care resident dies from COVID-19 in Interior Health

Man in his 80s dies following virus outbreak at Mountainview Village

(File)
One death and 82 new cases of COVID-19 in Interior Health

1,981 total cases, 609 are active and those individuals are on isolation

The former BC Tree Fruits office building at 1473 Water Street has been sold. (Contributed)
BC Tree Fruits downtown Kelowna office sold for $7.5M

Historic building sold for 44 per cent more than the $5.2-million asking price

Vernon-North Okanagan RCMP was called to a report of a fight at an Okanagan Landing Halloween party Saturday, Oct. 31, but issued the homeowner a ticket  under the COVID-19 Related Measures Act for having too many people at the party. (Black Press file photo)
West Kelowna man, dog rescued from carbon monoxide poisoning

The man was quickly transported to the hospital

Motorists wait to enter a Fraser Health COVID-19 testing facility, in Surrey, B.C., on Monday, Nov. 9, 2020. THE CANADIAN PRESS/Darryl Dyck
Another 694 diagnosed with COVID-19 in B.C. Thursday

Three more health care outbreaks, 12 deaths

The aftermath of the 3 a.m. fire in Keremeos. (Keremeos Fire Department)
Fire and explosion wakes Keremeos residents

A motorhome was consumed and a boat severely damaged after the 3 a.m. fire

A demonstrator wears representations of sea lice outside the Fisheries and Oceans Canada offices in downtown Vancouver Sept. 24, demanding more action on the Cohen Commission recommendations to protect wild Fraser River sockeye. (Quinn Bender photo)
First Nations renew call to revoke salmon farm licences

Leadership council implores use of precautionary principle in Discovery Islands

Ten-month-old Aidan Deschamps poses for a photo with his parents Amanda Sully and Adam Deschamps in this undated handout photo. Ten-month-old Aidan Deschamps was the first baby in Canada to be diagnosed with spinal muscular atrophy through Ontario’s newborn screening program. The test was added to the program six days before he was born. THE CANADIAN PRESS/HO, Children’s Hospital Eastern Ontario *MANDATORY CREDIT*
First newborn tested for spinal muscular atrophy in Canada hits new milestones

‘If Aidan had been born any earlier or anywhere else our story would be quite different’

Margaret Holm
HOLM: Better Bicycle Lanes

Margaret Holm writes about solutions to global warming

The newly opened Switzmalph Child Care Centre at Salmon Arm offers culturally enriched programs featuring the Secwépemc culture but is open to children of all heritages. (Martha Wickett - Salmon Arm Observer)
Video: Switzmalph Child Care Centre shares culture with Shuswap community

New daycare at Salmon Arm offers Secwépemc culturally enriched programs to children of all heritages

Man walking in the winter downtown.
Dyer: The role of air tightness testing in energy efficiency

Kristy Dyer has a background in art and physics and consulted for Silicon Valley

Cannabis bought in British Columbia (Ashley Wadhwani/Black Press Media)
Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

Susan Kootnekoff is the founder of Inspire Law, an Okanagan based-law practice, and provides Kelowna Capital News with weekly stories from the world of local, national and international law. (Contributed)
Kootnekoff: Are we really “all in this together?”

Susan Kootnekoff is the founder of Inspire Law, her diverse legal career spans over 20 years

Most Read