Help with emotional stress of palliative care

Palliative Patient Voices Network offers information source online at sensitive time in people's lives.

  • Jun. 11, 2016 3:00 p.m.

Elisabeth Antifeau is a regional clinical nurse specialist

Interior Health is championing a new website initiative that helps people find resources when they need them most-at the end of life.

The initiative includes updated change to web pages and a new resource guide for patients and loved ones, along with the input and guidance of  Palliative Patient Voices Network volunteers.

“The information is very important at a sensitive time in people’s lives, when they are experiencing a lot of emotional stress,” said Elisabeth Antifeau, Interior Health regional clinical nurse specialist, palliative care.  “The information has to meet practical needs, but it also needs to be sensitive.”

The newly designed web pages are broken down into six easy-to-understand sections—what is palliative care; making the tough decisions; choosing care options; caregiving and supports; what to expect in the final days; and after death.

“Our Patient Voices volunteers generously contributed more than 12 hours of their time to guide the development of the web pages,” said Antifeau. “All of them spoke about their experience losing loved ones and these patient journeys helped us decide how to structure information on the website site. People can go to the section they feel is best for them, to find the information they are looking for quickly and easily.

“The volunteers also gave us important insight into the language used. For example, they agreed that it should be written in a personal way, using a voice that reflects the importance of intimacy for this topic. We heard loud and clear that this website should be speaking directly to the user, with clear, sincere language.”

Okanagan resident Diane Edlund was one of several volunteers from the Patient Voices Network who helped with the site. Edlund who lost both parents to cancer, says she finds volunteering in this capacity personally rewarding.

“It’s a great way to give back and I’m a real advocate of the Patient Voices Network, because their mandate is to include the patient voice not only in things like website and brochure development, but throughout the system, at a strategic level. I believe the patient voice needs to be heard, especially when we are talking about things that directly impact care,” Edlund said.

Visit the new Palliative Care section on the Interior Health website to learn more and to find palliative care resources, including the new Palliative Journey Resource Guide.For more information about the Patient Voices Network visit www.bcpsqc.ca.

Just Posted

Cherry season has arrived in the Okanagan

Dust off those cherry pie recipes

Sun-Rype Products Ltd. and Mamas for Mamas announce partnership

The partnership will help support mothers in crisis

Foundry Kelowna makes health care impact

More than 1,000 people ages 12 to 24 in the past year have come seeking help

Canadian pet boutique expands to Ontario

The Bone & Biscuit Company looks to leave it’s paw print

Two artists put on divine feminine art show in Kelowna

The show will be on for the month of July

Homeless people living on ‘Surrey Strip’ move into modular housing

BC Housing says 160 homeless people are being moved into temporary Whalley suites from June 19 to 21

Port of Prince Rupert names Shaun Stevenson as new CEO

Stevenson has worked for the port for 21 years as vice president of trade development

Senate officially passes Canada’s marijuana legalization bill

Bill C-45 now moves to royal assent, which is the final step in the legislative process

Fake attempted abduction not funny to B.C. neighbourhood residents

Two teenage boys won’t face criminal charges after scaring girl

New craft brewery location chosen in Kelowna

Rustic Reel Brewing says it will produce beer at new location on Vaughan Avenue

Mosquitoes out in full force already? Blame the weather

But a B.C. mosquito expert says the heat wave will help keep the pests at bay

Man pleads not guilty in 1987 slayings of B.C. couple

William Talbott of SeaTac was arraigned Tuesday in Snohomish County Superior Court

New GOP plan: Hold kids longer at border – but with parents

Move would ease rules that limit how much time minors can be held with their parents

Without a big data strategy, Canadians at risk of being ‘data cows’

Presentation said artificial intelligence could give Facebook and Amazon even more power

Most Read