Lola Ophelia Doreen Potash

Lola Ophelia Doreen Potash

It is with our deepest sadness that we announce the death of our beloved, beautiful

Lola Ophelia Doreen Potash

At the tender age of 4 yrs old.

Daughter of Isaac Potash and

Jennifer Large and sister of

Keagan Potash. Lola suffered

from Dravet syndrome, but she shone through her syndrome like

a flower grows through concrete. We were always amazed and

impressed with her fierce courage, strength, determination, humor and her ability to shine love and joy through even her darkest hours. We could not have been more proud of her or more in love. We would like to thank her grandmother Doreen Large for the tremendous amount of hands on support she gave us every day of Lola’s life. Lola was always in the hands of someone who loved her, and her “Wawa” was strong enough to always fill Lola’s days with activities and hope. We could never have

managed without her. We would also like to thank our warm community of family, friends, and health care workers, who always showed us compassion and support. We

appreciated every frozen lasagna, hug, smile, and tear. We are blessed to live in a city with such an amazing,

hardworking team of pediatricians. Dr. Kim Burrows

responded to every page, saw us immediately, and was so kind to Lola that she would ask to go see her. She was amazing. We were also blessed to be a part of Canuck Place hospice house and it is difficult to put into words what they do for children like Lola and the families who love and support and care for these special children. And of course the Neurologists at Children’s hospital and their dedicated nurse clinicians, whom are so overloaded with cases, but manage to create life-saving care plans for thousands of children. We are humbled by your knowledge and

dedication to such a difficult area of medicine. At this time we are choosing to grieve privately for Lola. We built our life around her and it will take time to figure out how to live

without her. In her memory, please learn which families in your community are caring for children with medical

difficulties and show these people support. It is amazing how far a batch of muffins, an extra hand at raking leaves, or even an inquiring phone call go.

We will miss you dearly Princess Lola.

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