Melissa Verleg (middle) has been fighting for access to medication for her cystic fibrosis. (Photo submitted)

Okanagan Walks to Make Cystic Fibrosis History

Penticton and Vernon two of 11 that have events taking place Saturday, May 26

During Cystic Fibrosis Awareness Month, participants from more than 70 communities in Canada will come together to participate in The Walk to Make Cystic Fibrosis History on Sunday, May 26.

The Walk to Make Cystic Fibrosis History is returning to Vernon at Polson Park.

“This is the first walk recently. There used to be a walk here years ago but there wasn’t anyone to run it,” said Melissa Verleg, who stepped up to orgnaize the event this year. “I’m not sure when the last one was.”

Verleg, who has spent over a year fighting the government for rights to medication for her cystic fibrosis, attended the walk in Penticton with her family last year. She lost access to a medication called Orkambi on Jan. 20, 2018 and with it, she lost the ability to perform even the simplest of tasks such as cooking dinner and playing with her kids.

When The Morning Star reached out to ask if she has had any success, she wrote, “I don’t have much of an update pertaining to my fight for Orkambi. The government still hasn’t changed their stance on anything.”

Related: MLA pushing province and pharmaceutical to save Vernon woman

Related: Melissa’s battle hurts

This year marks the 15th anniversary of the Canadian Walk to Make Cystic Fibrosis History. Registration begins at 9:30 a.m. and the walk is set to take place around 10 a.m. Vernon’s walk is three km long and will end with a closing ceremony at 11 a.m. Organizers ask that no pets be brought to the walk.

“I welcome everyone to join me and Walk to Make Cystic Fibrosis History,” said Verleg.

More than 4,300 Canadians live with Cystic Fibrosis, the most common fatal genetic disease among Canadian children and young adults. There is no cure.

To register or donate, visit www.cysticfibrosis.ca.

Related: Vernon puts wheels in motion for bike to work week

Related: Tickets for annual hospital gala almost sold out

To report a typo, email:
newstips@vernonmorningstar.com
.


@VernonNews
newstips@vernonmorningstar.com

Like us on Facebook and follow us on Twitter.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

UPDATE: 6.5-magnitude earthquake in Idaho shakes B.C. Interior

An earthquake was reportedly felt just before 5 p.m. throughout the Okanagan

West Kelowna pauses Re-leaf Program after COVID-19 confirmed at local nursery

Tree deliveries are paused until further notice after outbreak confirmed March 31

COVID-19: Non-profit 3D printing face shields for local hospital

‘The response has been completely overwhelming’

UPDATE: Outbreak of COVID-19 at West Kelowna agricultural business; 14 cases confirmed

75 workers are in isolation — 63 migrant workers and 12 local workers

Memorial Cup concert with Brett Kissel canceled amid COVID-19 concerns

Brett Kissel was scheduled to perform at Live on Lake in Kelowna on May 30

B.C. records five new COVID-19 deaths, ‘zero chance’ life will return to normal in April

Province continue to have a recovery rate of about 50 per cent

UPDATE: Coronavirus concerns prompt event cancellations across the Okanagan

This is a running list of events cancelled across the Okanagan

Community drums up support for North Okanagan hospital workers

Even health care workers and fellow first responders turned out to show love

South Okanagan first responders salute hospital workers

“You’re awesome” and “Thank you” say Penticton first responders, passing by emergency entrance

John Horgan extends B.C.’s state of emergency for COVID-19

Premier urges everyone to follow Dr. Bonnie Henry’s advice

B.C.’s first community COVID-19 death was dentist ‘dedicated’ to health: lawyer

Vincent was 64 when he died on March 22 after attending the Pacific Dental Conference

Two inmates at prison housing Robert Pickton test positive for COVID-19

Correctional Service of Canada did not release any details on the identities of the inmates

‘April Fools’ social media prank leads to criminal investigation in Osoyoos

Post claims individuals will be canvassing door to door seeking housing for seasonal workers

Stay inside vehicles on Interior ferry crossings to prevent spread of COVID-19: B.C. government

Glade, Kootenay and Arrow Lakes some of the ferry crossings in Interior

Most Read